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Post by Cubby on Oct 26, 2011 16:44:24 GMT -5
So, if no more chemo, when do you find out what is next?
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Post by peggypansy on Oct 30, 2011 17:40:54 GMT -5
I just had my first ct scan since chemo/radiation started. It will be compared to the one taken on 6/25/11 which was after surgery and before chemo/radiation.
I see the onc. on Tues. for the results and will find out what kind of follow up there will be from here on out.
I'm doing very well and my hair is almost 1/4 in. long now!!
I'm also going to see if there are exercises I could do to improve my breathing. I can stroll from store to store shopping w/o any problems but if we want to go for a walk, I seem to pick up the pace too much and it makes it very hard to breathe. That is where I am wanting improvement.
Hope all of you are doing well. Praying for all.
Peggy
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Post by jeffn on Oct 30, 2011 18:21:55 GMT -5
Hey Peggy you are getting hair just in time to be warm for the winter. ;D Sounds like the lungs are doing well and you are out pushing the envelope - Good for you. I hope you have a great report on Tues.
All the best!
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Post by christel on Nov 6, 2011 17:01:44 GMT -5
ditto from me to Jeff's post, Peggy! Take care.
Christel
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Post by peggypansy on Nov 8, 2011 14:41:27 GMT -5
The ct scan looks good. Having a PET scan on Nov. 23rd with follow up Dr. appt on Nov. 30th! A whole month without a doctor appointment.
I guess this is the time when you just have periodic check ups and pray that everything stays clear.
We are trying to retrain the car not to go to the hospital or doctor's office when we drive down certain streets!!
Planning for a great Thanksgiving with the family!
Peggy
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Post by grammie on Nov 8, 2011 20:24:17 GMT -5
Peggy, I had lung involvement and was sent by my doctor to the pulmunary PT class at the local hospital. It was 12 weeks of PT geared just for the lungs. You might ask about it. It sure did help me and I still use some of the techniques.
grammie
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Post by peggypansy on Nov 11, 2011 22:20:28 GMT -5
I just saw my pulmonary doctor this week and he's having them contact me to get started. The should contact me next week and then I can get started on that. So looking forward to breathing better.
Other than that, I'm feeling pretty good.
I think I have a rather unusual side affect from the chemo and/or radiation. My fingers no longer look like sausages! My sister even noticed that when she was here for a visit last month. I haven't had any swelling since sometime after chemo started. I thought my ring was loose because of the weight I had lost, but my fingers definitely had definition now!! Strange things.
Peggy
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Post by jeffn on Nov 12, 2011 11:42:59 GMT -5
Glad the sausage fingers are gone, do you have less sensitivity in the now? When my swelling went down so did my pain. I don't miss that part. It appears you are doing very - nice goin'
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Post by Nancy - South Jersey on Nov 12, 2011 23:02:58 GMT -5
Wishing you well, Peggy. Hope you keep feeling better and better every day!!
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Post by Cubby on Nov 16, 2011 16:18:55 GMT -5
Peggy: wishing you all the best! Have you considered swimming or water aerobics for help with your lungs? Just wondering.
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Post by antonietta46 on Nov 30, 2011 8:59:53 GMT -5
Hi Peggy,
Have not been on in a while hope u are doing well, and that you made that trip to Disney! Always in my prayers!
Antonietta
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Post by peggypansy on Dec 3, 2011 22:21:13 GMT -5
Annette, we have not made the trip to Disney yet, but are seriously considering it due to some news we just got.
Went to the oncologists office on Nov. 30 to get the results of the PET scan and he said I lit up a few areas. It seems I lit up two small lymph node areas but there is a possibility that it could be pieces left from my surgery. The mass of lymph nodes were in the middle of my chest and the surgeon had trouble trying to get all of them because they were behind the esophagus. I may be a little off on that, but that's what I remember at this point.
The other area is called iliac and is basically in the back of my pelvic bone. I will be having a bone biopsy on Tues., Dec. 6th and will get the results on Dec. 8th. There is always the possibility that it isn't cancer and that's what we are hoping and praying for.
I will let you know what we find out.
Thank you all for caring.
Peggy
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Post by jeffn on Dec 4, 2011 17:37:47 GMT -5
Sending good thoughts your way Peggy. Good luck on Tues.
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Post by steve201 on Dec 4, 2011 18:21:15 GMT -5
wow girl...you sure have been thru the ringer.....and back.....prayers your way hon!!!
Steve
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Post by peggypansy on Dec 27, 2011 17:25:31 GMT -5
I hope everyone had a wonderful Christmas!
I thought I should give you the latest update. I have started radiation treataments for the bone cancer and have completed eight of fourteen.
I had a MRI of the brain and NO CANCER! That was the best Christmas present ever!!!
I see the oncologist on Jan. 5th and I will have another IV of Zometa to strengthen my bones. I guess I will be getting them every four weeks now. At that time he will also discuss more chemo for the lymph nodes in my chest that need to be treated. It is my understanding that they do not want to retreat that area with radiation. I'm ok with that!!
My blood work continues to linger in the anemic area and doctor is concerned that I'm not producing more red blood cells, at least not enough to get me in the range!! I do believe that is the scleroderma causing that. That is a major concern for him.
I also have started pulmonary therapy and I am hoping to increase my breathing/walking/talking stamina. If I would just keep my big mouth shut I would be able to breathe better! Oh, well, got to keep getting my two cents worth!!
Have a very Happy New Year!!!!
I do want to thank those that sent me Christmas cards. I apologize for not doing that this year. I really enjoyed that. Next year I will be on top of that!!
Peggy
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