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Post by peggypansy on Jul 2, 2011 11:13:16 GMT -5
Well, here's more information. On June 30th I met with the doctor who will be doing the radiation and he did say that sd and radiation don't mix well and I might get scar tissue and it may affect my esophagus where I will have to have it stretched. I know some of you have been through that. I will have six weeks of radiation, five days a week in combination with chemo.
On July 1st I had a port inserted for chemo and any other stuff they want to inject or remove from me. My vessels on hands and wrists are not doing so well and it takes multiple tries to find the right vein.
On July 8th I get fitted for my form for radiation treatment. They will do all the measurements and checks and balances and that's how I will be for every treatment. My arms will be raised somewhat over my head for the treatments and my fibro is not going to like that but the treatments should only last 15 to 30 minutes from arrival to departure. They said the radiation might give me a sore throat and it will feel like I have a lump in my throat. At least it will all be over by the end of summer and I can recover for a trip to Disney World in November or December. That is the goal I'm working for right now!
Thank you for all of your prayers!
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Post by jeffn on Jul 2, 2011 16:16:51 GMT -5
Peggy I was just thinking about you the other day and wondering if you had started treatments yet. I'm sure it will not be any fun but your attitude is so good you will get through all of this. Keep thinking about that trip south in the fall. Be well and be strong!
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Post by christel on Jul 3, 2011 11:45:11 GMT -5
I second Jeff's remark.. keeping you in my thoughts and prayers!
Christel
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Post by peggypansy on Oct 6, 2011 13:37:39 GMT -5
I think I should be giving you an update. I have had 28 radiation treatments directed just right of the center of my chest, where they removed the mass of lymph nodes. I have also had a total of 12 chemo sessions. Right now my oncologist is consulting with a highly respected lung cancer specialist in Iowa City to see if he feels I should have additional chemo treatments. My oncologist said he would give them to me in a flash if I didn't have scleroderma, but is hesitant because it could cause major problems. This would be more aggressive chemo drugs. So, now we wait and see what is recommended.
I am doing very well. Totally bald!! But it does make getting ready in the morning much easier!
My esophagus has finally healed from all of the radiation. For a while it was very painful to swallow. Heads up....I am doing good!
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Post by christel on Oct 6, 2011 14:25:18 GMT -5
Good to hear, Peggy, and thanks for the update. Your chipper attitude is a large part of the whole 'being sick' thing; keep it up!
Christel
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Post by kathsherman on Oct 6, 2011 16:22:22 GMT -5
glad to hear the update peggy....thanks for keeping us informed and hang in there girlfriend, you are a strong lady!!!!
kathleen xo
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Post by jeffn on Oct 6, 2011 17:13:53 GMT -5
Keep the faith Peggy. You sure have been through a lot. Keep up that great attitude and I wish you all the best.
Please keep the updates coming.
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Post by nhnancy on Oct 6, 2011 20:29:26 GMT -5
I love to hear you are doing "good"...I admire anyone that has to go through this...keepon...keeping on! ;D
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Post by peggypansy on Oct 12, 2011 10:48:38 GMT -5
Off to Iowa City today for that second opinion to see if I should have more chemo and/or if it will cause more problems because of the scleroderms. Will keep you posted!!
Peggy
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Post by Cubby on Oct 12, 2011 14:33:02 GMT -5
God Bless you Peggy!!! Here is hoping for helpful news and a speedy recovery! My thoughts and prayers are with you!
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Post by jeffn on Oct 12, 2011 15:40:33 GMT -5
Hope you hear good news today with no surprises.
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Post by peggypansy on Oct 14, 2011 20:52:24 GMT -5
The lung cancer specialist in Iowa City said no more chemo. He thinks it would do more harm than good. I do need a ct scan so that should be set up in the next week or so.
I see my regular oncologist on Tuesday and will find out what kind of follow up treatment schedule I will be on.
I wonder what it will be like to go a week without seeing a doctor?
I do so appreciate all the prayers. All of us need them.
Peggy
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Post by steve201 on Oct 14, 2011 20:56:50 GMT -5
peggy...thanks for the update.......glad to hear your now off chemo....nasty stuff!!!!....we're prayin your cancer free and won't have to do anymore stuff.....
god bless you hon and heal up.....keep a good attitude.....
Steve
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Post by kathsherman on Oct 15, 2011 16:52:53 GMT -5
peggy,
glad you are able to have a "dr.apt.-free" week and hope the chemo is done for good....thanks for letting us know!
kathleen
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Post by nhnancy on Oct 15, 2011 18:02:29 GMT -5
enjoy your doc free week...no more chemo sounds good!
I hope you are feeling better and better....!
Nancy~
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