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Post by kathsherman on Jun 29, 2012 13:10:45 GMT -5
Steve...wow...wondering if it is actually GAVE per jeff's post...as you know, common with sclero, unfortunately. Just know that we will all be thinking of you and eventhough I haven't posted much, still keeping an "eye" on everyone here....and....please keep us posted, we love you too!!!
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Post by jeffn on Jun 29, 2012 17:10:57 GMT -5
Well perhaps the best part is they should know a lot more about what is happening in there come Monday. I went in for mine and the gastro guy told me after it was GAVE and he didn't bring the laser down to the island with him but thought that giving up anti inflamatories would do the trick. I went down to my docs and saw him and said they had found the answer to my bleeding. His reply was oh yeah we heard and already have the pictures. Word travels fast in a small town I guess. Anyway I did not take any NSAIDs for about a year, even the little asprin, and all has been fine. I am probably due in the next year or so for a repeat I'll be curious as to what things look like in there now.
At any rate good luck Monday and hope you get some decent news.
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Post by grammie on Jun 30, 2012 5:49:31 GMT -5
Hang in there Steve! You are in my prayers.....as is Marsha.
grammmie
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Post by nhnancy on Jul 1, 2012 10:25:06 GMT -5
thinking of you Steve...lets hope they get to the bottom of it..I had GAVE, also...and mine seems to be doing ok, I need to have some testing done... I did you a procedure that I swallowed a camera..and it sent pics back to a waist mounted receiver for about 4 hours...
We are all pulling for you and Marsha much love Nancy~
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Post by jeffn on Jul 2, 2012 15:18:06 GMT -5
So what is the news Steve?
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Post by steve201 on Jul 3, 2012 10:29:56 GMT -5
Hi guys...I was totally out yesterday....I got in at about 10:30 and was released somewhere around 2:30.... here's the diagnosis....I have 4 ulcers in the colon which is causing the bleeding and anemia...but they also think I have crohnes disease....they took several biopsies and are working those ..I should know more in a day or so.....I'm hoping it's just irritation or something simple like ants or something....anyway....sunday wasn't fun as I got hauled off to er again with extreme gut pain and vomiting ...agin!!!..... another 5 hrs in ER before they figured out I had been there a couple of days before...got some good meds and a few xrays and they said since I was getting the procedure done the next day...that they would release me to go home....well...another fun fact...I'd had a bronchoscopy done many yrs ago when I first got dx'd with sd....they got me into the operating room and put me under...well..I evidently didn't want something shuved up my nose and down into my lungs....so they had to double dose me and hold me down...
well..when I went in this time I asked which they were going to do first ..endo or butt hole....they said top endo....I told them they better knock me out solid or I'm going to fight you......they evidently didn't believe me cuz I woke up yesterday with my throat sore and marsha told me they were surprised when I fought them....I don't know why!!...I told em I would fight them.......idiots...
anyway..that's the latest...
Steve
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Post by kathsherman on Jul 3, 2012 10:35:59 GMT -5
not fun!!~~!! please let us know when they call with results...hope you get some rest now. kathleen
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Post by jeffn on Jul 4, 2012 7:19:33 GMT -5
Well good luck with all that Steve. What did they suggest to fix the ulcers? Did the laser them or do they heal eventually? Sure does not sound like a fun 4th for you.
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Post by steve201 on Jul 4, 2012 9:23:36 GMT -5
nope...I think the plan would be better living thru chemistry......drugs and more drugs....they didn't lase the areas at all.....I figured they would have done something while I was under there.... nope...this is the 2nd time my 4th of july has been crappy...actually....crappy would be better than what this one is right now....haven't pooped in something like 3 days now......
thanks for all the prayers guys....greatly appreciate all the well wishes....but keep marsha in your prayers and thoughts too...she's got her super hearing up to 10....any little sound and she's up at the foot of my bed checking on me.......god bless her.... test results should be in tomorrow. steve
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Randy
Junior Member
Racing Gloves on!
Posts: 81
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Post by Randy on Jul 5, 2012 0:05:46 GMT -5
Steve,
Hang in there. Sorry you are going through more problems. However, with your great attitude you will sail though all of it.
Randy
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Post by christel on Jul 5, 2012 7:53:55 GMT -5
I second Randy's comment--hang in there, Steve! Yet another bump in the road!!
Christel
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Post by jeffn on Jul 7, 2012 12:02:43 GMT -5
How are you doing Steve? Any new info from your tests? With any luck you are on some new meds and they are doing their job.
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Post by steve201 on Jul 7, 2012 19:04:31 GMT -5
it's been a crazy week to say the least....I had the first er visit a week ago...I got my fluids up and pain meds in me and they threw me out...had the colonoscopy/endo done and they found a 4 ulcers along with some sort of (what they thought) was bacteria...well...the lab work came back last thursday and no virus or bacteria....in the mean time I made another visit to the ER...and same thing...
after going home I had a pcp appt on thursday and my doc came in and said...oh my god..your going to VM main campus...(I had lost 30lbs since my physical and probably 10lbs in the past week or two......)...your in bad shape....great...so...he calls me transport and that's where I've been ever since....I had numberous blood tests done....they got my blood work back up with iv's....pain meds and anti nausea....they did a special blood test that kinda points out to leukemia....but they also said there could be a raging infection going on also....or it could be a cancer....some sort of blood platelette that is showing new cells that shouldn't be kicking them out is pumping out of my bone marrow and they don't know why.......with that the oncologist came in and said ..don't get all worked up...we just don't know what is going on right now and this is to eliminate another possibility..... so..they kicked me out of the bed and said go home with a fist full of meds...
got home and boy am I nauseated and sore..I've never been stuck so many times in my life....heck if the illness doesn't kill me...them stabbing me and taking a bunch of blood what seemed every 5 min will....
that's what's going on.......
hope your doing better than I am.....
Steve
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Post by kathsherman on Jul 8, 2012 11:19:46 GMT -5
thanks for the update steve...been thinking of you and will be so glad when you are feeling better and no more stabbing (know how you love those needles) ....hugs to you and marsha from new york...kathleen..xo
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Post by christel on Jul 8, 2012 16:12:03 GMT -5
Jeepers, Steve! Enough already!
Honestly, I do hope you feel better and have the worst behind you..
Get well soon!
Christel
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