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Post by jeffn on Sept 30, 2010 6:14:22 GMT -5
Welcome - Please tell us a little about yourself, and post often.
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Post by steve201 on Sept 30, 2010 7:49:59 GMT -5
Hi Mel!!
Glad you joined our little band of merry folks
welcome to the zoo!!
Steve
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Post by nhnancy on Sept 30, 2010 9:11:58 GMT -5
WELCOME MELANIE!![/color] ;D
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Melanie
Junior Member
It's Not What You Gather, But What You Scatter That Tells What Kind Of Life You Have Lived
Posts: 60
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Post by Melanie on Sept 30, 2010 13:05:49 GMT -5
 :)Hello everyone! I started on minocycline today (2 pills daily). I'm sure hoping that I can see similar results that some of you have seen. I was diagnosed with diffuse systemic scleroderma one year ago. It's been a difficult journey so far with the skin hardening and the inability to stretch. My fingers and arms have begun to curl. I have some lung involvement and a chronic cough, but don't seem to have any problems breathing as yet. I'm so anxious to see how the antibiotics work! I am currently taking Cytoxan infusions once a month at 1000 mgs each and will do that for a total of 12 months. Hopefully that will keep it from progressing further into my lungs or any other internal organs. It is so helpful to be able to chat with someone who has some knowledge of this crazy illness. Thanks, Steve, for putting me onto this site!
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Post by steve201 on Sept 30, 2010 14:33:55 GMT -5
Glad you joined mel... several folks here were in the same place as you are..... now get into some sort of PT to excersize and stretch....it's hard...(believe me I know how hard it is) and keep coming here...we listen well and care a bunch... and visit the joke section....tons to laugh at...  Steve ;D ;D ;D |
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Post by sherion on Sept 30, 2010 19:55:11 GMT -5
Hi Melanie!!! So glad you're here!!! Please continue to post and keep up updated on your progress!
Sherion
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Post by Cubby on Oct 27, 2010 16:45:34 GMT -5
Hi Mel! Glad you are here! Good luck on the MINO--many of us (not all) are taking that and doing very well!!!
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:)Hello everyone! I started on minocycline today (2 pills daily). I'm sure hoping that I can see similar results that some of you have seen. I was diagnosed with diffuse systemic scleroderma one year ago. It's been a difficult journey so far with the skin hardening and the inability to stretch. My fingers and arms have begun to curl. I have some lung involvement and a chronic cough, but don't seem to have any problems breathing as yet. I'm so anxious to see how the antibiotics work! I am currently taking Cytoxan infusions once a month at 1000 mgs each and will do that for a total of 12 months. Hopefully that will keep it from progressing further into my lungs or any other internal organs. It is so helpful to be able to chat with someone who has some knowledge of this crazy illness. Thanks, Steve, for putting me onto this site! 
