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Post by Blue 1965 on May 26, 2010 6:41:09 GMT -5
Hello I am Blue I love in Ohio and I have scleroderma CRET of the CREST and PH. I was dx in 1996 with sclero and 2005 with PH. I am looking for other who have sclero and Ph. I am very lonely at times. Not too many people to talk to. I don't work. Well I don't know what else to write. B
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Post by steve201 on May 26, 2010 8:00:43 GMT -5
HI Blue!!..welcome to the zoo!!....we're kinduva goofy bunch and welcome anyone here to share thier stories....... I've been dx'd with SD since 2000 and now going on 11yrs still vertical......
feel free to look around..poste what you think...read a few jokes....we got it all here...
I keep telling myself..."Cheer up...things could be worse...sure nuff , ..I cheered up and things got worse!!!" ;D ;D ;D Steve
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Post by Blue 1965 on May 26, 2010 12:59:53 GMT -5
Thanks Steve. I sure will seems like you have a great attitude toward life.B
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Post by sherion on May 26, 2010 19:18:38 GMT -5
Hi blue, so glad you're here!! Also glad you're already posting. Sclero can be a very lonely disease! At least here we all understand each other. We do all we can for each other, including helping anyone out of the dumps. After all, who can read Steve's (and a few others) jokes and not at least smile!!!!!!!!
Sherion (my name is spelled wierd but pronounced like Sharon. Bad penmanship on birth certificate or a bad speller!! LOLOLOL
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Post by jeffn on May 26, 2010 19:22:10 GMT -5
Welcome Blue glad to have you here. You don't have the "S"? No bent fingers - you don't know what you are missing. ;D I have CREST (all of it) but not PH.
Sherion, Thanks for the explanation I was curious about the pronunciation.
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Post by Cubby on Aug 28, 2010 13:53:23 GMT -5
Hi Blue!! I have been really out of the loop here for the past 6 months. I hope you are making some friends and are no longer so lonely. Believe me, we have a bunch of crackpots on here (Steve 201 and JeffN come to mind). Just kidding, the people on here are awsome and I have met some of them! I also go visit scleroderma patients when I travel, although I didn't do it this time.
I did, however, just have dinner Wednesday with one of my pals out here who has scleroderma. She looked awsome! We are both on AP, so you can guess, we are doing well!!!
Welcome to the board. Sorry my welcome is so late!
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