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Post by kathygirl on Mar 10, 2010 18:00:26 GMT -5
Has anyone had the collegen buildup and skin tightness in there back? I am finding it increasingly difficult to bend over. The tightness is spreading to stomach area , under bust, underarms and legs. I am also getting holes in my skin about the size of a quarter. I am taking keflex and mino. I see Dr Sinnott in Ida Grove in a couple of weeks. Cant wait to see what he suggests.
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Post by steve201 on Mar 10, 2010 18:42:08 GMT -5
yeah...I had it just about all over....arms....stomach...back....had to endure deeeeeeeeep tissue massage to move the collegen from pooling....hurt like a Mutha......
plus the prednisone....cytoxan.....ap....and 30 other pills per day...
Steve
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Post by Cubby on Mar 17, 2010 13:25:31 GMT -5
Yeah, I had it all over. Could not roll ov er in bed at nite. did you ever go back on the AP?
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Post by jeffn on Mar 17, 2010 16:18:37 GMT -5
I did not have a huge problem tight skin limiting my movement. I had tight skin on my forehead, arms, and legs but not too limiting uncomfortable but in my case not very restrictive. I did have a few spots that felt like all the layers were attached right to my bones. I had one on my ribs that when I would turn and stretch a certain way it felt like my skin was attached to my ribs. It probably was huh. Seemed to be about the size of a half dollar. There were a couple of other spots too. All that - the arms, legs, forehead, and those spots are gone now fortunately.
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Post by kathygirl on Mar 17, 2010 20:55:42 GMT -5
Cubby, Yes back on minocycline. The best news I am seeing Dr Sinnott in Ida Grove on Monday . I am hoping to get an antibiotic cocktail that will kill off every little bacteria going.
After the doctors appointment we are heading to Atlanta for a few days then Myrtle Beach. I have been feeling rather sick lately so I hope I am up for the trip.
Will keep you informed about the appointment. Kathy
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Post by christel on Mar 18, 2010 8:11:08 GMT -5
Kathy, The trip to the warm spots may be some very important (and perhaps more effective) treatment for you right now. Try to RELAX and truly enjoy this time away. Good luck!  Christel |
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Post by Cubby on Mar 19, 2010 14:55:45 GMT -5
KATHYGIRL: I hope he gives you a great cocktail so that you can enjoy your vacation! Hopefully, being back on the Minocyclene will help you! Keep us posted as we all want to be sure you are OK.
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