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Post by scheetzie on May 25, 2009 20:29:58 GMT -5
Does anyone else on here have trouble being outside when it's sunny and hot ?? I get to feeling physically sick (headache, sick in the stomach, etc) - I was never this way till I got hit with the big SD close to 10yrs ago.............. OR is it more likely it is coming from all the meds some of us have to take - none of my meds actually say to use caution in the sun............ If this is truly do to the SD - then I guess we can't win either way .........COLD does a number to our Raynold's...........and then feeling like crap from the heat.......... Thanks in advance for any info or personal experiences anyone has to share....... HUGS, Donna  |
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Post by terri9967 on May 25, 2009 21:20:35 GMT -5
Not sure if its the meds or SD, my doctor told me no sun and no extreme heat. I get the same way you do but I also get rosacia (spelling bad) on my face when in sun.
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Post by sherion on May 25, 2009 22:06:29 GMT -5
My Rheumy tells me at every visit to STAY OUT OF THE SUN. I've never questioned him, but I have an appointment with him on Wednesday and,if I don't forget, I'll ask him why. I also cannot stand to be hot. Anything over 70 is hot to me. The heat makes me feel weak and lethargic.
Sherion
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Post by jeffn on May 26, 2009 6:29:35 GMT -5
My experience has been the opposite. The last eight or nine years I have been more cold and dealing with summer heat better. In the winter I was much more cold and could not keep warm. I would hardly even break a sweat ever in the summer. I have to wonder if it was part of the Raynauds. The last year and a half I have been much warmer. I think my circulation has been better. My feet still get a little cold in the winter and my hands are still very hard to deal with in the cold. I wonder if your problem is more meds related or a combination of the meds and SD? I have to be careful in the sun because of the anti-biotics, I tan really well. A couple of days in the sun I look like I have been out for a nice vacation. I don't have a problem with burning but do darken up more and I was darker to begin with from the SD.
Whatever it is I would ask your Doc or Pharmacy and not push it when you are outside. Do you wear a hat in the sun?
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Post by kathsherman on May 26, 2009 9:21:37 GMT -5
Love the sun and warm weather!!! Like anything else...moderation. Living in central N.Y. and surviving long winters, I feel like "the tin man" in the woods, when he finally gets oiled (wizard of oz). As soon as the weather turns warmer, I can move more easily!!! I love to be outdoors and caring for our yard/flowers brings me such joy. Mowing the lawn....not so much. I "ride" the mower while my husband does the pushing for the trim work. Sitting on a field, watching my daughter's lacrosse game in the sun can be a bit much, but I wear sunscreen and stay hydrated. Anyway.....regardless of the SD or the meds., I try to be outdoors as much as possible, but avoid too much sun exposure. Hope this helps....
Kathleen xoxo
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sammie
Junior Member
Posts: 64
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Post by sammie on May 26, 2009 11:36:10 GMT -5
I am usually always cold, which I hate. But there is a point that when it is really hot and humid I have similar problems, including swelling of my hands and feet. When I am home and air conditioning is on I always have warm clothes on. If I have to go outside for some reason I get really hot, have to change my clothes.
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Post by Peggy Bessee on May 26, 2009 14:18:30 GMT -5
I do not deal well with heat and humidity. Anything over 75 and I drop or droop. Whichever. I don't remember being this way when I was younger so don't know if it's SD or just getting old. ;D
PeggyPansy
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Post by thefangs on May 26, 2009 18:44:26 GMT -5
jeff always says, "the hotter it is, the better". i, on the other hand, do not handle heat so well and sweat like a banshee in the sun. we both enjoy being on the mississippi river on our pontoon, so that will not change. jeff was always dark skinned before, but is more so now. we've tried taking him off the minocycline because of the skin, but it didn't make any difference, so he went back on it. heat just doesn't bother him AT ALL! laurie (and jeff)
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Post by klw1960 on May 27, 2009 7:30:51 GMT -5
I love the heat and am finally wearing sandals and bare toes...although I cannot go barefooted like I used to, feet hurt too much. BUT, I have to avoid the sun because of the meds I am on I fry like burnt chicken even with sunscreen. Our youngest plays high school and summer baseball and I really got burned at a double header about a month ago. Now my skin is blotchy and I peeled like crazy. I am dark skinned to begin with because of SD and now I look like neopolitin ice cream...
I think it is the aldtacizide, procardia and enparil that do not like the sun along with the antibiotics when my fingers are infected.
Karen
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Post by steve201 on May 27, 2009 7:59:21 GMT -5
it's the meds...I can't get in the sun anymore cuz of the tetracycline.....I'll blister and burn in a second...so..it's sun screen and cover myself up to keep from burning....if we were further south..I'd probably burst into flame or something.....
some meds clearly state to avoid the sun ....so make sure you read those...
Steve
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Post by sherion on May 27, 2009 19:26:51 GMT -5
My Rheumy said today that the Ultra violet rays inflame the Sclero and that is why he advises against the sun. He said that if I do go in the sun to be sure to wear sunscreen and to try to avoid the mid day hours.
Sherion
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Joy
New Member
Posts: 5
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Post by Joy on May 28, 2009 0:15:45 GMT -5
Oops!!!!
I love the sun.....love working in my flowers beds when its warm out....it gives me alot of energy. I used to take Cellcept and I was always out in the sun...and is stated to stay out of the sun....I always forgot...then I finally started to wear sunscreen!!!
I think it depends on the person....if the sun makes you feel good...just make sure you wear sunscreen. Like Steve....always check to see what your meds say!!!
joy
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Post by deannagraham on May 28, 2009 10:04:49 GMT -5
Aaaahhhh. Heat, blessed heat. We live in central Florida, and there is absolutely no way to avoid the sun, unless you choose to wear a burka or something. I have all the windows open and am wearing a muumuu, which I guess would be the south Florida version of a burka. I spend as much time in the heat, but out of direct sun, as possible. I am only on some obscure antibiotic called dapsone, but since I underwent full body irradiation I have been warned not to get direct rays. The hubby calls me monkey, since I am brown and scrawny and my hair came back like some sort of curly cap. I visited my sister in Maine this winter, and frankly I don't see how any sd sufferer could live in a cold state like that. So, to each his own, I guess.
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joyu
New Member
Posts: 28
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Post by joyu on May 28, 2009 10:33:38 GMT -5
I have trouble with the cold and heat. Raynaud's and joint pain and asthma in the cold weather,but now the asthma seems to be triggered by the hot > 80 also. I like the warm because of the raynauds. When I was tanned from the d-pen. I would not burn much,but on cellcept I really got burnt the other week,so I will have to be careful this summer.
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Lindar
Junior Member
Posts: 52
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Post by Lindar on May 28, 2009 11:23:12 GMT -5
I LOVE the heat!!! Not too much the sun but I find it's a little to chilly if I stay in the shade if there's a little bit of a breeze, my raynaud's acts up. I started over a yr ago getting sores on my forearms. More like blisters but nothing comes out of them. It looks like raised skin (round) and after a time the skin will peel off but it's still there. They are noticable as they are lighter then my skin colour. One rheumy told me they were changes in my skin due to the sun. They don't hurt or anything, just one more thing that I've had to get used to.
I'm not in sandals yet and don't get to wear them too much in summer because of the raynaud's. Like Terri, I also have rosacea on my face and the sun effects that as well.
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