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Post by grammie on Feb 15, 2010 8:33:20 GMT -5
SInce I've had to space dairy...was told three hours away from mino....I find that milk and ice cream often give me a belly ache. Interesting what meds do for us ....and 'against' us!
grammie
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Randy
Junior Member
Racing Gloves on!
Posts: 81
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Post by Randy on Feb 16, 2010 0:21:04 GMT -5
I take my morning mino a couple of hours before breakfast and I typically take my evening mino 30 mins before bedtime. Both times I drink about 8 oz of water with it. Dr. F. was pretty amazed how late at night I take my mino, and he suggested I take it 30 mins before dinner. Sometimes I do that, particularly if I think my stomach is getting a bit acidy.
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ewa
New Member
Posts: 2
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Post by ewa on Aug 2, 2011 7:10:13 GMT -5
i hope you can help me. i have scleroderma. worst affected are my hands - sclerodactyly. my skin is showing classic symptoms and my joints are very painful. walking is difficult, ankles, knees, elbows, wrists shoulders affected. i am pretty much housebound. my symptoms started just over a year ago. i am 60 yrs old. i have not taken any other medication. i live in spain. i am a british citizen eligible for nhs treatment. my doctor here in spain says there is nothing he can do for me and that i have to go to england to see a specialist. however, i am not fit to travel at the moment because i cannot walk or stand straight and i get easily out of breath. my dr in spain refused to prescribe anything - washed his hands of me and simply told me to go to the uk to see a specialist. in spain you can get anything at a pharmacy without a prescription except narcotics. i have been taking minocin 100mg twice a day for 2 months. there has been no change at all.
can you confirm that the recommended oral dosage is 100mg twice a day. i have come across conflicting advice like 3x per week once a day and 5x per week once a day and that too high a dosage is not always effective.
any help and advice much appreciated.
thanks ewa
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Post by Cubby on Oct 26, 2011 17:10:09 GMT -5
EWA: Most of the people I know take 100 mg 2 times a day of the brand name, MINOCIN. that appears to be the dosage most people take. Yet, I do hear some who do "pulsing" which means they take it every other day, or 3 or 5 times a week. You can find out more by going to roadback.org as that whole website is dedicated to AP, but everyone does not have Scleroderma.
I know you wrote your post in August, but hope you get this one. Wondering if you are starting to have good results yet.
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Post by steve201 on Oct 26, 2011 19:26:15 GMT -5
Wow...I didn't even see this one !!!..I must be getting old or something...
Cubby is correct ...but....you can also use Tetracycline 250 mgs x2 per day... if you can get either minocycline or tetracycline...it will take a bit of time for you to see any results.....sorry..wish it was a magic bullet or something....but the only thing you can do...even at 60 is to keep moving....some sort of excersize...... walking...moving as far and much as you can.....find another doc if you can....
sorry I'm so late with this...
steve
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