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Post by ndpblake on Oct 13, 2009 18:55:37 GMT -5
Cubby,
I am interested in the process of Photopherisis (sp?) and wonder if you know if this is covered by most insurance. If not, do you know about how much the process costs? It has been very positive for you along with AP, I know. Nancy Blake
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Post by jeffn on Oct 14, 2009 18:24:21 GMT -5
Cubby is on the road for a few days. I'm sure she will catch up with you when she gets back online and give you the low down.
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Post by steve201 on Oct 16, 2009 19:49:28 GMT -5
How much ya wanna spend??? I got one of those harbor freight dual halogen flood lights !!  just kidding... Steve |
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Post by ndpblake on Oct 17, 2009 13:28:30 GMT -5
Yes, that will do it! As long as they are approved by the FDA. I think I could afford that. Nancy B.
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Post by Cubby on Oct 25, 2009 12:32:07 GMT -5
NANCY: Hi!!! sorry it took so long to respond. The treatments cost $12,000 per session. A session is two days in a row. My hospital, USC, is in network with my insurance. I have a PPO so I can go anywhere but it is cheaper if I go to a network hospital. Anyway, the insurance network cost goes down to less than $3,000 for that $12,000 cost. Then, I pay a portion of that, I think it is 10%, can't remember. But, I pay between$600 to $700 out of pocket. I do know one person who is fighting right now to get it covered. It is an unsual situation where his UNION rep, controls his access to the insurance company and that person denied the treatment stating it is "experimental". IT IS NOT EXPERIMENTAL, so hopefully, the man will win his appeal.
Absolutely, the Photopheresis and AP together have worked a miracle on me! Let me know what else I can help you with.
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Post by ndpblake on Oct 28, 2009 20:09:41 GMT -5
Thank you Cubby for the information. I have not answered because I was in hospital for 6 days. Ok now, but do not want to go there again! You are very lucky, but it still costs you a lot! I am taking Letairis for PAH which costs $5,132 a month, but it is taking care of through a Foundation which helps people with PAH, Huntington's Disease, and 2 others. It remains to be seen if it will help PAH. I don't know about Photopherisis. I think I would have some fight to get that, but thank you anyway.
Nancy B.
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Post by Cubby on Nov 2, 2009 20:45:02 GMT -5
Well, I pay about $600 to $700 each time I get treatment which is now about every 10--12 weeks. But, once I reach my cap for the year which is something like $4.500,then I don't pay anything. Now, I don 't even reach my cap.
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