Day 2 through 5 of AP

[terri9967]

Well it is day 5 of my treatment and I have not posted any updates.
Tuesday (day 2)300mg was pretty good. I had more energy than I have in a few years. That is the only change.

Wed (day 3)600mg not so good. Very very tired and my i.v line had to be change due to an infection at the injections site. The i.v was then place in the crease of my right arm at the elbow. It sucked there!!! Couldn’t bend my arm without a lot of pain. No change in any of my symptoms.

Thurs (day4) 600mg Lots of nausea today. Still very tired. No changes in symptoms.

Friday (day 5) 900mg Not good. Had to call the nurse first thing in the morning, to come change the i.v location again. Was put in left forearm. Did first treatment of 900mg. Lots of nausea again. Spent most of the day in bed sleeping. Went to do evening dose and my i.v line was bad. I couldn’t get the flush to even go through. Nurse came out at 9pm to move it once again. Left forearm again. No changes in symptoms.

[steve201]

man...sounds like a rough time.....stay focused and positive!!...we're all prayin for ya!!

Steve

[Randy]

Terri,

Just relax and take it easy and the IV's will be like a cake walk.

I certainly get malaise as an AP herx symptom, among other herx symptoms. I have not been nauseous from the clindy. Is that a side effect from clindy? Getting a metal taste in the mouth is a definite side effect at the higher doses. Chew gum for that! If nausea is a side effect, then having your doctor Rx some mild anti-nausea medicine is probably in order. You may want to post on the RBFBB to see if anyone else gets nausea from clindy IVs (lots of folks are on clindy IVs there).

Randy

[Randy]

Terri,

Also, are you taking any other meds that could be causing the nausea? (e.g., anxiety meds, etc.)

Randy

[terri9967]

Hi Randy.....

Yes, nausea I was told is a side effect of the clindy. I chew gum to the point my jaw hurts! As for other meds I am on, some so have nausea but I have been on them for some time now and the nausea is not a problem with them anymore.

Second day on the 900mg and just did my evening dose and boy am I hurting, not just my muscles but my joints are killing me. Confusion is becoming a real problem lately, I hope this passes soon.

[Randy]

Hi Terri,

Wit out a doubt, joint pain is part of herxing, particularly joints where you have preexisting problems. The dying bugs toxins go right into your joints. You can read all about this. For me, I define herxing as an exacerbation or exageration of your SD symptoms. This is very eveident to me during the Clindy IV's. Also for me, the herxing continues for up to 4 days after the IV's, and is typically very rough the two days after IV's. Your protocol is different then mine and of course, everyone's SD is different.

Confusion - A lot of folks talk about brain fog. Is it because of the SD, Clindy IV's, mino, autoimmune disease in general, or stress? It is very common, and we all have to work through it.

Hang in there and I hope you feel better during the upcoming week. I can assure you that good weeks will follow and that AP will work, though you will need to be very patient and you will have to persevere.

Randy