Post by christine10 on Aug 4, 2009 12:33:07 GMT -5
Hi All;
I have been far,far away from the computer as the orchids are taking soooo much time and we are getting ready for two more shows.We have been having rain every second day so things outside are growing like mad,so much so that I have to freeze or can veggies at least twice a week.Can any of you invent a 48 hour day for me?
There has been a tremendous amount of really interesting info on Roadback in the last couple of weeks and you really should take a look at the last 4 pages and read some of the wwws that are linked there.
This one showed up this morning and thought it might inspire a few of you.You know I am a complete and utter failure with the computer so I don't know how this will show up.Tried just highlighting the wwws but can't seem to tranfer them here.You might end up getting the whole page.
Road Back Foundation Bulletin Board Home
Search
My Account
Members
Calendar
Help
Home
Search by username
Logged in as Lynne G./SD - No new messages [Logout]
Road Back Foundation Bulletin Board > Discussion of the Antibiotic Protocol for Rheumatic Disease > General Discussion > THE LUNGS
THE LUNGS
Moderated by: rbfbb, moderator
New Topic
Reply
Print
Author Post
Parisa
Member
Joined: Sat Feb 16th, 2008
Location:
Posts: 400
Status: Offline
Posted: Mon Aug 3rd, 2009 11:16 pm
Quote
Reply
I have been saying for a while that I was going to post research I had done several years ago when my husband first became sick and his lungs started to go south. The following research was my guiding light that I stuck to no matter what the pulmonologists and rheumatologists recommended.
1. www.chestnet.org/education/online/pccu/vol16/lessons13_14/lesson13.php
This is an enlightening piece published in Chest. Basically it says that not alot is known about pulmonary fibrosis and that neither treatment with corticosteroids or cyclophosphamide or azathiprine has shown any benefit. (Amazing that the pulmonologists push these drugs with such horrible side effects while refusing antibiotics!)
2 ajrccm.atsjournals.org/cgi/content/full/156/6/1897
Study showing improvement in 18 patients with fibrosing alveolitis when treated with 600 mg of NAC three times a day.
3. www.medscape.com/viewarticle/508001
This study shows treatment of patients with COPD with NAC. Once again the lungs improve.
4 aac.asm.org/cgi/content/abstract/50/2/739
Study shows that doxycline can slow down the progression of pulmonary fibrosis.
5 Richard Firshein, The Neutraceutical Revolution and Reversing Asthma. These books have alot of information regarding the general health of the lungs. Firshein is also a strong believer in the use of NAC.
Others, if you have research regarding the lungs, please feel free to post on this thread. I know I'm missing research on treatment with enzymes and fibrosis. I had it somewhere but seem to have misplaced it.
____________________
Husband with Dermatomyositis, Pulmonary Fibrosis, a twist of Lyme and a splash of Babesia
Margaret Mueller
Member
Joined: Sun May 3rd, 2009
Location: Roseville, California USA
Posts: 11
Status: Offline
Posted: Tue Aug 4th, 2009 12:56 am
Quote
Reply
Very nice work, and needed. Thank you for this effort.
____________________
Dx: Pos Scl-70 March 2009, Scleroedema Dx: July 15, 2009
150 mg Doryx 2X/da M-W-F, Ultra-Flora Probiotic, Co!10, Omega 3, Beta Glucan, Acetyl-L Carnitine, Energy Booster
Kim
Volunteer
Joined: Sun Feb 17th, 2008
Location: Indiana
Posts: 1222
Status: Offline
Posted: Tue Aug 4th, 2009 05:52 am
Quote
Reply
Hey Parisa,
I just have to say what a joy it is to hear your husband has truly turned the corner. Your persistence and patience have surely paid off in a big way and you deserve a pat on the back. He was a slow responder and it took guts to stick with the program that you so believed in, so another pat on the back.
Hugs to you both.......kim
____________________
SD, RA, MCTD, Thyroid, Sjogren's, Uveitis, Lyme dx 9/08, AP 8/05-3/08, MP 3/08-8/08, AP/Lyme protocol 9/08-current, Celiac dx-1/09, infrared sauna therapy, 3/09-parasite cleanse, oh my!
2009....."whatever it takes"
Current time is 10:16 am
Watch Topic
Powered by WowBB 1.7 - Copyright © 2003-2006 Aycan Gulez
I have been far,far away from the computer as the orchids are taking soooo much time and we are getting ready for two more shows.We have been having rain every second day so things outside are growing like mad,so much so that I have to freeze or can veggies at least twice a week.Can any of you invent a 48 hour day for me?
There has been a tremendous amount of really interesting info on Roadback in the last couple of weeks and you really should take a look at the last 4 pages and read some of the wwws that are linked there.
This one showed up this morning and thought it might inspire a few of you.You know I am a complete and utter failure with the computer so I don't know how this will show up.Tried just highlighting the wwws but can't seem to tranfer them here.You might end up getting the whole page.
Road Back Foundation Bulletin Board Home
Search
My Account
Members
Calendar
Help
Home
Search by username
Logged in as Lynne G./SD - No new messages [Logout]
Road Back Foundation Bulletin Board > Discussion of the Antibiotic Protocol for Rheumatic Disease > General Discussion > THE LUNGS
THE LUNGS
Moderated by: rbfbb, moderator
New Topic
Reply
Author Post
Parisa
Member
Joined: Sat Feb 16th, 2008
Location:
Posts: 400
Status: Offline
Posted: Mon Aug 3rd, 2009 11:16 pm
Quote
Reply
I have been saying for a while that I was going to post research I had done several years ago when my husband first became sick and his lungs started to go south. The following research was my guiding light that I stuck to no matter what the pulmonologists and rheumatologists recommended.
1. www.chestnet.org/education/online/pccu/vol16/lessons13_14/lesson13.php
This is an enlightening piece published in Chest. Basically it says that not alot is known about pulmonary fibrosis and that neither treatment with corticosteroids or cyclophosphamide or azathiprine has shown any benefit. (Amazing that the pulmonologists push these drugs with such horrible side effects while refusing antibiotics!)
2 ajrccm.atsjournals.org/cgi/content/full/156/6/1897
Study showing improvement in 18 patients with fibrosing alveolitis when treated with 600 mg of NAC three times a day.
3. www.medscape.com/viewarticle/508001
This study shows treatment of patients with COPD with NAC. Once again the lungs improve.
4 aac.asm.org/cgi/content/abstract/50/2/739
Study shows that doxycline can slow down the progression of pulmonary fibrosis.
5 Richard Firshein, The Neutraceutical Revolution and Reversing Asthma. These books have alot of information regarding the general health of the lungs. Firshein is also a strong believer in the use of NAC.
Others, if you have research regarding the lungs, please feel free to post on this thread. I know I'm missing research on treatment with enzymes and fibrosis. I had it somewhere but seem to have misplaced it.
____________________
Husband with Dermatomyositis, Pulmonary Fibrosis, a twist of Lyme and a splash of Babesia
Margaret Mueller
Member
Joined: Sun May 3rd, 2009
Location: Roseville, California USA
Posts: 11
Status: Offline
Posted: Tue Aug 4th, 2009 12:56 am
Quote
Reply
Very nice work, and needed. Thank you for this effort.
____________________
Dx: Pos Scl-70 March 2009, Scleroedema Dx: July 15, 2009
150 mg Doryx 2X/da M-W-F, Ultra-Flora Probiotic, Co!10, Omega 3, Beta Glucan, Acetyl-L Carnitine, Energy Booster
Kim
Volunteer
Joined: Sun Feb 17th, 2008
Location: Indiana
Posts: 1222
Status: Offline
Posted: Tue Aug 4th, 2009 05:52 am
Quote
Reply
Hey Parisa,
I just have to say what a joy it is to hear your husband has truly turned the corner. Your persistence and patience have surely paid off in a big way and you deserve a pat on the back. He was a slow responder and it took guts to stick with the program that you so believed in, so another pat on the back.
Hugs to you both.......kim
____________________
SD, RA, MCTD, Thyroid, Sjogren's, Uveitis, Lyme dx 9/08, AP 8/05-3/08, MP 3/08-8/08, AP/Lyme protocol 9/08-current, Celiac dx-1/09, infrared sauna therapy, 3/09-parasite cleanse, oh my!
2009....."whatever it takes"
Current time is 10:16 am
Watch Topic
Powered by WowBB 1.7 - Copyright © 2003-2006 Aycan Gulez