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Post by christel on Aug 17, 2009 8:47:18 GMT -5
Raynaud's continues to be my biggest challenge. No new ulcers have occurred in the 3+ years since my sympathectomies, but I have also learned to really be more careful with exposure (imagine that!). That doesn't mean that I don't have extreme sensitivity/pain with the wrong moves!
Sitting in the stadium of a Tigers ball game in 90 degree heat in the middle of the day was never my cup of tea, but I took full advantage of it yesterday afternoon. I wished I could store some of that heat for the inevitable fall and winter temps we will see all too soon in Michigan!! Oh well, such is life...
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Post by christel on Aug 17, 2009 8:47:46 GMT -5
Raynaud's continues to be my biggest challenge. No new ulcers have occurred in the 3+ years since my sympathectomies, but I have also learned to really be more careful with exposure (imagine that!). That doesn't mean that I don't have extreme sensitivity/pain with the wrong moves!
Sitting in the stadium of a Tigers ball game in 90 degree heat in the middle of the day was never my cup of tea, but I took full advantage of it yesterday afternoon. I wished I could store some of that heat for the inevitable fall and winter temps we will see all too soon in Michigan!! Oh well, such is life...
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Post by christel on Aug 17, 2009 8:48:36 GMT -5
oops, just in case someone didn't see my post, I decided to log it again... sorry about that!
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Post by Cubby on Aug 23, 2009 11:57:57 GMT -5
I took ADALAT which is a calcium channel blocker for the Raynauds. Of all the terrible problems I had, I had very little symptoms from the Raynauds. So, JEFF, my question is, do you take any calcium channel blockers? I know you probably addressed this previously, but I have been off the board a while, so can't remember.
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Post by jeffn on Aug 23, 2009 13:30:43 GMT -5
No Cubby I just take mino and prilosec and some OTC vit. and supplements. I am curious about botox injections like Nico has had for my Raynauds. Cold weather is on the way so I will soon see how the Raynauds is this fall.
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Post by Cubby on Aug 24, 2009 20:50:33 GMT -5
I also used a THERMAPHOR Muff which is a plug-in MOIST heating pad. Way-back-when, I used it every morning and night. Really helped a lot!
JEFF: Good luck. I know how awful that pain is.
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Post by shirley on Aug 26, 2009 18:45:59 GMT -5
Jo Jo..can you tell us more about the grape seed extract? The exact doasge you take...how many in a day? Is it a pill or a liquid? I felt like extract was a liquid in a small bottle...is that right? Hugs, Shirley
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Post by jojo19551 on Aug 27, 2009 10:58:44 GMT -5
I take 100 ul per day, which is is capsule form. I did take 2 a day but found it was not necessary. A few of my co-workers also take it for their Raynauds and we all stopped our nifedipine. Once I stopped the nifedipine I lost the swelling in my legs, so, I am a happy camper. Once is a great while (maybe once per month) my hands get white but never hurt. I have a friend who is a cardiologist and he wants me to start taking ACAI berry tablets but did not start that yet. He claims that also helps with the circulation. JoAnn
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Post by shirley on Aug 27, 2009 13:44:15 GMT -5
Thank you JO JO! I totally believe in taking something more on the natural side than prescribed med's ...that is...if you can find something that will hep you just as much. I appreciate you getting back with me... Hugs, Shirley
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