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Post by jeffn on Jul 25, 2009 20:28:19 GMT -5
I have noticed all of a sudden within the last two weeks that my hands and particularly my fingers have become much less sensitive than previous. While they had been gradually becoming more normal they were still sensitive but I was doing something at work the other day that until recently had caused me some minor pain and now it does not. I did run hot water on my hands today and I am still sensitive to that BUT maybe not quite as much as before. So temperature maybe less but still feel it but pressure from holding something greatly improved.
Anybody go through this? Raynauds is still unchanged but this has given me a little more hope for improvement in the Raynauds perhaps down the road.
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Post by sherion on Jul 26, 2009 18:54:52 GMT -5
Wow Jeff. I think ANY improvement is great! I don't have much problems with my hands, just mild swelling and achy finger joints. I just think that it's great that you're showing new signs of improvement every day! Good for you!
Sherion
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Post by jeffn on Jul 26, 2009 19:54:34 GMT -5
Thanks Sherion, My hands in the last three years went from feeling like they were in a bucket of broken glass all the time and being mostly useless at times to in the past year or so to pretty good. My middle and index fingers on both hands are still curved somewhat but as far as use of my hands things are much better particularly when compared to not all that long ago. My improvements in general are gradual and then one day I realize something has changed for the better. This most recent change was kind of surprising, more surprising than usual for some reason. Maybe because my hands were the first thing to cause me trouble when SD appeared. They say that the first symptoms are the last things to improve with AP so maybe this is a big step - or not. Who knows. I'll take it though!
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Post by jojo19551 on Jul 27, 2009 8:44:02 GMT -5
Jeff, I had lots of pain in my hands and it completely went away when I started taking grape seed extract, 100ul per day. When I started taking this I also could go off my nifedipine. The grape seed extract increases circulation and has been so, so helpful for me. JoAnn
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aajmom
Junior Member
Posts: 76
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Post by aajmom on Jul 27, 2009 14:37:50 GMT -5
YAY!!! I think that's wonderful! Every little improvement is really a BIG DEAL- nothing to sneeze at! It's that good stuff- AP! Our hands really are so critical to our lives and most people don't even realize what a big problem it can be when we start having trouble with them. I'm glad for you- I hope they continue to show further improvement! Please keep us informed!- Adriane
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Post by jeffn on Jul 29, 2009 16:03:02 GMT -5
I was connecting some AC units today at work and previously, well in the last year and a half anyway, I would have been able to do the work but with some hand pain. I have been trying not to wear gloves for the past several months as I had been wearing them as an extra layer to make the hands hurt less. Anyway I had very little pain today so I think things have changed for the better.
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Post by steve201 on Jul 31, 2009 10:50:29 GMT -5
boy..wish I could say that....between the 100 deg. heat we've had...and our office being like an ice box half the time...my right hand has been driving me nuts...it's fine when I'm in the heat or driving with the sun hitting my hands...but the second the AC hits me...my hand hurts like you wouldn't believe.....my middle finger ulser and skin hardens enough to make things really difficult to pick up things...
but....I push on...
Steve
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Post by jeffn on Jul 31, 2009 16:33:40 GMT -5
Steve I guess I am fortunate that my digital ulcers healed totally several months into AP. They began to heal about three weeks in, that was the first definitive thing I noticed. I don't miss them they did suck big time. My Raynauds does not bother me too much with AC but add some humidity to cold and my fingers blanch. I have big dreams about the Raynauds abating. Gotta believe right.
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Post by steve201 on Jul 31, 2009 17:22:14 GMT -5
I have big dreams about the Raynauds abating. Gotta believe right. Absolutely!!...good on ya!!... Steve |
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Post by grammie on Aug 1, 2009 20:13:30 GMT -5
What wonderful and encouraging news, Jeff!
I was told by the nurse prectitionare to try B6 and that has helped me. It can be gotten at the health food store...and maybe a drug store.
Jojo19551---where do you get the grape seed oil? I have a bottle of it and was told it was good for cooking but it really hasn't worked as a cooking oil so I just have it sitting there! Can you tell me more?
grammie
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Randy
Junior Member
Racing Gloves on!
Posts: 81 
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Post by Randy on Aug 2, 2009 12:21:24 GMT -5
Steve,
You may want to look into Lumbrokinase (Boluoke), from Adbvanced Medical Labs, for your finger ulcers and Raynauds. Dr. F. has had me on it for quite a while, but in May I increased the dose with his approval, and my fingertips have improved dramatically. One 20 mg capsule twice a day is great for me. Sometimes I take 3 per day. Basically, it is for circulatory health. I can get you more details.
Randy
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Post by steve201 on Aug 3, 2009 11:33:01 GMT -5
Randy..
that would be cool....please fwd what ya got...or post it here!!..
Steve
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Post by grammie on Aug 3, 2009 19:25:09 GMT -5
Helpful hint that I'm going to try is to make the micorwave bags. I have a friend who has made some....using cattle corn. I'm going to try to make pocket ones for inside the house and the like and save the commercial ones for outside.
To make one, make it like a beanbag and fill it with the cattle corn. Microwave just 15 sec to start and see if the bag is hot enough. Do this as often as needed.
Sure worth a try! Grammie
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Post by deannagraham on Aug 15, 2009 21:35:17 GMT -5
For some reason I am really using the kung fu grips a lot more lately. You should see my hands in latex gloves for cleaning. I look like a cartoon chacter with the extra finger ends sticking out ever-which-a-way. I attribute the increased use to decreased knuckle pain from the warm weather. I will be seeing a physical therapist who is presumably going to design a stretching board. I already have a full load of pain and plan to tell her that I am not doing painful things to my hands. Eventually they are going to stabilize, or I will undergo that fusing surgery. It is such a mystery that I had a stem cell transplant, and yet this continues while other, many crucial, symptoms have improved. Go figure.
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Post by jeffn on Aug 16, 2009 11:58:12 GMT -5
It is interesting what does what. I'm on AP and EVERYTHING but my Raynauds has improved. Last fall when cold weather came the Raynauds may have even been a little worse than the year before. Be interesting to see what they are like this fall. I guess we have have to take somewhat of an "on average" view of our improvements.
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