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Post by grammie on Dec 20, 2014 7:20:11 GMT -5
Found out last week that our 41yr old daughter has early CREST SD. Sure do feel bad for her. Her dr began to give her the list of how to help her raynauds and skin and she smiled and chuckled. Then gave the list to him saying her mom had SD. I was wondering if this is inherited. Anyone hear of others with it in one's family?
Just curious.....Grammie
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Post by grammie on Dec 21, 2014 10:26:51 GMT -5
Yesterday my daughter told me her eye dr. Said her dry eyes and blocked oil glands in the eye lids were SD side effects too. My eye dr never commented that my eye condition, which is the same, was SD. Any one else have this? Just curious......
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Post by isobelle44 on Dec 21, 2014 15:34:55 GMT -5
I have heard others talk about having symptoms like that with the eyes. I don't have anyone in my family's past that has had anything associated with sd unless it was undiagnosed.
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Post by jeffn on Dec 21, 2014 15:51:09 GMT -5
Grammie are you speaking about Sjogren's Syndrome perhaps. Dry eyes, mouth and nasal passages? That is not uncommon for us. Several years ago after I was DXed with SD when I went to my eye doc for a regular eye check up I asked her about Sjogren's and she did the test, I don't know what they call it, where they put the little strips of paper (litmus paper?) in your eye to test. The doc said that was the definitive test for Sjogren's, my eyes were OK. In regard to SD being hereditary I have read that there is a 1% or 2% chance of child of an SD sufferer having SD also. How they figure that out I have no idea. I worry about my son and SD for sure. I feel for your daughter and hope she can find ways to deal with SD. Hopefully she is otherwise healthy and will be aggressive in finding a treatment. Is she located in your area?
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Post by grammie on Dec 22, 2014 10:40:16 GMT -5
Hi Jeff, she lives about 4 hrs away. She is being tested for other auto immune things too. I have been asked if I have been tested for Sjogrens which i haven't been tested for but I do have dry mouth and a smaller one as well as the eye issues. She is here now and we looked at hands today. Her's aren't as noticeable as mine but there iare changes when we look at three others. Interesting.
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