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Post by isobelle44 on Jan 30, 2014 9:47:00 GMT -5
I have morphea all over, which from what I understand is just the skin part of scleroderma and its not suppose to affect organs. I don't have raynauds yet. But I wondered what you use for your tight skin. I have noticed my skin getting so tight and so dry, I put on tons of cream but it doesn't seem to help much, I have a humidifier in my room. Any ideas would be greatly appreciated. Thanks, Sharon
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Post by jeffn on Jan 30, 2014 12:36:05 GMT -5
Sharon, The only idea I can offer is that when I first had SD I did a lot of reading like we all do. At the time the advice for lotions was to avoid any skin care products containing collagen. As we have to much collagen it made sense but I don't see much about that subject of late. Why add more of something you have to much of already. At the time I switched to Palmer's cocoa butter formula and it did work better than the product I had used to that point. Also back when rheumy #2 said that cocoa butter products were useful for us SDers He said he had one patient with a shrinking mouth that used to swish cocoa butter around in their mouth for pain relief.
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Post by isobelle44 on Jan 31, 2014 2:22:07 GMT -5
Oh now I hadn't heard that before and I thought I read everything to. But it sure makes sense. I will have to look again, I know I looked for products without alcohol. Thanks jeff.
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Post by grammie on Jan 31, 2014 15:15:22 GMT -5
Hi Sharon, I think I used a cream that had lanolin in it. Now I use just plain old fashion Vaseline. It seems to work for me.
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Post by isobelle44 on Jun 23, 2014 7:35:42 GMT -5
Oh thank you grammie.
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Post by Nancy - South Jersey on Jun 23, 2014 18:36:31 GMT -5
How about coconut oil? I've been reading that it's good for EVERYTHING, evan bacteria in your mouth by swishing it around for 20 minutes.
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Post by isobelle44 on Jun 23, 2014 20:37:52 GMT -5
I also have been reading about coconut oil and one of my friends uses it as lotion. I will try that too
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Post by nhnancy on Jun 27, 2014 19:38:23 GMT -5
I agree coconut oil, organic...its amazing and you can do oil pulling (swishing)...its healthy oil..I also would avoid chemicals if possible, though I do use foot lotion try it, you willbe amazed! I use it on my face at bed time, a little goes a long way, you can make it with a drop of lavender oil...for a nice scent. :-)
Nancy in NH..
I have been in the pool and noticed the chlorine, is drying my skin, so
Drinking lots of water, I take a B complex vitamin, which is a hair skin and nail formula,
I have diffuse SD, SO i don't know ...how much its helping me, though, it has helped with the
neuropathy in my feet. Best wishes to you. hope this helps!
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Post by jeffn on Jun 28, 2014 20:13:52 GMT -5
How are you making out Izzy? Have they put you on the new meds yet? If so how is that going? The coconut oil might well be a good thing, there appears to be a lot of info on the web lately about it's benefits.
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Post by isobelle44 on Jul 5, 2014 15:23:31 GMT -5
No I haven't gone on the new meds yet. trying to avoid it. Next appointment I will probably have to switch. I am trying the coconut oil sometimes it feels softer and loosend up a bit. Keep working on it.
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Post by grammie on Jul 14, 2014 17:03:35 GMT -5
Glad you found something that is helping.
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