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Post by beebell on Jun 22, 2013 16:01:04 GMT -5
Hello Scleroderma Family me beebell. It's been too long I know. I have been living my life. I went to see Dr. Franco on the 19th and he gave me congratulations on my health. All of my skin scores are now 0! Dr had decreased my medication I no longer take Clindamyocin. I only take Minocin 2 x a day. I still deal with bad Anxiety about my health. I guess that is normal eh? I have been working working for 2 years Elementary school aide. I love it! Going to the gym- never thought I would work out again. I have changed my diet- Gluten free huge difference! Paleo for the most part. It has been 5 years sense I was dx and I'm doing well. I hope to stay well. I have my days but its normal. I will get my complete lab work in a couple of weeks little worried still hope everything is fine. I am very sad to hear about Steve. RIP my friend thank you for your advise, path, hope and jokes during my time in need you are missed. xo Love and health to all!- Beebell...
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Post by jeffn on Jun 22, 2013 19:42:53 GMT -5
Beebell - great to hear you are doing so well! A success story is always good to hear. Becoming "normal" again is wonderful isn't it. What dosage of mino do you take? I reduced from 100mg twice a day to 100 once a day over a year ago. No change in my condition so that is a plus.
If you care to share I would like to hear about your lab results when you get them.
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Post by isobelle44 on Jun 22, 2013 21:51:44 GMT -5
Hi Beebell glad to hear your doing well. Nice you have the energy to work like you do in the field you are. That says alot. Hope you keep up the good reports.
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Post by beebell on Jun 23, 2013 10:41:16 GMT -5
I take 100 mg minocin 2 x a day
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Post by christel on Jun 23, 2013 14:13:56 GMT -5
Yes, yes, yes! So nice to hear things are going well for you! It brings hope to all of us, and we are always happy to hear good news!
Continued good health in all you do!
Christel
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Post by jeffn on Jun 23, 2013 19:02:13 GMT -5
Thanks beebell. I never did the IVs. I'm guessing your Clindy was by IV? Your dose is the one I started on. If I were starting now I think I would perhaps opt for the IV program. I think it would kick start the process. Thanks for the reply.
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Post by beebell on Jun 24, 2013 10:23:32 GMT -5
I never did the IV's Just 300 mg 2x a day
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Post by grammie on Aug 1, 2013 18:55:32 GMT -5
Hello beebell, Glad the SD has diminished! Wonderful news. Hope it all continues to go away!
grammie
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