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Hi all
Jun 15, 2009 3:08:38 GMT -5
Post by farzam on Jun 15, 2009 3:08:38 GMT -5
This is Farzam, I had posted a few before on the old board under fh. It is nice to find you guys again. Just to introduce myself one more time, I was DXed in Sep 2007 and from same year Dec I am on AP and I should say it has done miracle on me. I am feeling much better, more energy and my skin is gone back to almost normal. I am not saying I am cured, but definitly much better. By the way I live in Tokyo. Wish you all the best and I will keep in touch from time to time.
Farzam PS: Steve, where are the jokes?
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Hi all
Jun 15, 2009 7:54:03 GMT -5
Post by steve201 on Jun 15, 2009 7:54:03 GMT -5
Hi Farzam!!...glad you could find us......also really happy that your results on AP is working well...that's great news...
the jokes are in the main page...at the bottom....say's "Jokes"
so..post often...that's what we're here for..
Steve
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Hi all
Jun 15, 2009 17:34:21 GMT -5
Post by Cubby on Jun 15, 2009 17:34:21 GMT -5
FARZAM: Soooooo glad u r here!!!!! Also, that is WONDERFUL that u r doing so well on the AP. I am well also. Very close to remission. (finger still not totally normal).
I take Minocin, 100 mg 2 x per day. Is that what u take? I also do a treatment called PHOTOPHERESIS along with it.
WELCOME BACK!
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Hi all
Jun 16, 2009 20:51:13 GMT -5
Post by farzam on Jun 16, 2009 20:51:13 GMT -5
Cubby,
The hospital that DXed me refused the AP treatment. I had to go on net and find a doctor 20Km away who was willing to priscribe AP. He said Minocin is sold in Japan under the name of Minomycin and although I insisted on 100mg 2x per day, he just gave me 100mg 1x per day but It seems that it is working anyhow. Although he gave me the medicin, but it was obviouse that he is not a beleiver and he is now very surprised with the results. My latest blood test, the ANA was back to normal.
Farzam
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Hi all
Jun 17, 2009 19:54:58 GMT -5
Post by steve201 on Jun 17, 2009 19:54:58 GMT -5
Great news Farzam....that is just great that your responding to ap.....keep up the good work ..
Steve
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Hi all
Jun 17, 2009 20:47:30 GMT -5
Post by sharona on Jun 17, 2009 20:47:30 GMT -5
Hi Farzam I'm Sharon and have Scleroderma and Lupus. Glad you found the board. My son goes to Tokyo on business alot hasn't gone this year tho due to cut backs. He works for New United Motors and goes to the Tokyo one alot. Well glad to meet you and that things are going well for you. Hugs, Sharon
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