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Post by jeffn on Dec 9, 2011 21:06:18 GMT -5
Went in for a bone density scan today. The last one was two years ago and previously I had a baseline one done maybe five years ago. Unfortunately between the first one and the second one they changed the type of machine and the results are not readily comparable. Not helpful I think. Anyway the early word on the scans is that there is little change from the scan two years ago. I have to wait for a more official report next week but I am happy with what I have heard so far. Does anyone else get these on a regular basis. I would think that for the women it would be part of a physical on a semi regular basis.
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Post by steve201 on Dec 10, 2011 0:28:33 GMT -5
yes jeff...I get them every yr...along with my pft(pulmenary functions test).....mine has been stable....at first due to the cytoxan I was taking...I was loosing bone density...but after I went on calcium suppliments...I have increased my bone density to normal now....
I also did my echo cardiogram a few months ago and he results are stable and normal...so..according to my latest check up just before thanksgiving....I'm doing extremely well....I have trace damage to my right hand due to renauds.....but everything else is completely healthy and normal ...... my Doc says I have maybe 20% chance of it coming back...as long as I stay de-stressed....and healthy...I should be ok......big relief sigh from both of us at that meeting...
Steve
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Post by christel on Dec 10, 2011 21:51:55 GMT -5
I have never had a bone scan. I do get regular pft's and echocardiograms. I may ask about the bone scans when I go for a followup visit to my rheumatologist later this month. Thanks for the reminder, Jeff!
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Post by nhnancy on Dec 11, 2011 13:47:11 GMT -5
bone density is a part of my annual physical exams..women over 40? or maybe it's 50? ....due to the fact that during menopause out bones loose density they used to say it was a "normal" part of aging...cuz our bodies are geared for making babies, so when that part of life is over...our bodies fall apart...now they try to replace what shuts down...make sense?... plllllph... sometimes i wonder what is from "normal aging" and Sclero, know what I mean???
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Post by jeffn on Dec 11, 2011 15:54:30 GMT -5
I discovered my bone decline at a local health fair they used to have at the hospital here. I was going through the different test areas an I say a guy I knew in the bone density test line. He talked me into getting checked. I guess it is the low tech version as you just put your ankle in the machine. My test result was below average or whatever. I went back the next year and it was lower, this was a couple of years before major SD symptoms. I had asked my doc about it and after my SD DX he said he thought my osteopenia was probably caused by my SD. So to your point Nancy some of the bone loss is SD related or could be. I take calcium supplements every day and I feel my circulation has improved a lot in the past three years. I am guessing here but I think that has maybe stabilized my bone loss. I hope. I should hear results this coming week.
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Post by nhnancy on Dec 11, 2011 21:10:35 GMT -5
...Calcium supplement question...I thought calcium interferred with Mino absorption...if you are taking 2x a day..when/how do you take your supplements?..
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Post by jeffn on Dec 11, 2011 21:27:36 GMT -5
Nancy you are correct, no minerals near the mino. Supplements go down first thing in the morning before breakfast. Eat breakfast just after 7AM, take my mino at 9:30. Lunch is at 12 weekdays and I take a milk thistle, three or four probiotics and prilosec then. Mino again right before I go to bed. I know they say you should not lie down after taking the mino but I have done it for five years and not had issues.
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