The joys of this med!

[grammie]

As I said on another post, I'm doing really well with AP. I went in Sept to Dr T and to my pulmonary and all is well. I've even put on a little weight! I did have an issue in August with the lungs but records shows it was last year too so maybe allergy related. Pulmonary said that SD lungs don't wheeze....interesting....they just shut down! Mine are good.

And we've had a lot of company that we haven't seen in several years and they can't get over the change in me (2yrs dx and 18mon on mino). My hands now close almost normally! I can make a fist and cut with scissors! It is wonderful when others comment on how much better I am.

That is the best medicine I can have and makes the occasional stomach ache tolerable....knowing that this stuff is working!

Praise the Lord for directing me to you folks and for the encouragement to read the books and discover I live near the leading research center (Dr T and his crew) and to go that route.

I never want to go to what I was! I feel good! ...... now to get the raynaund's under control........

grammie

[nhnancy]

Hiya neighbor!
;D

I was wondering where you were! It was nice chattin with you!
I started a blog (hopefully about my improvement)
I added a link into my signature so you can check it out anytime, do stop by and drop me a line..
I know there are probably lots of typos and misspellings and etc..
I am so glad you are doing better...it inspires me

Nancy~

[jeffn]

Great news Grammie!

[Cubby]

Grammie, I am sooooo happy for you and for all the rest of us doing well!!!!!

[grammie]

Hi there,

Back again from....who knows what all....busy, busy, busy! However, I have been to pulmonary and my lungs are still good. He couldn't get over the hands and skin being so good having "just minocycline" for SD. He has released me with instructions that, should the signs return that I'm to return to him right away. In the meentime, he said I was 'good to go'....so going I am!

Dr T is also pleased with the changes and I'm to 'stay put' on the mino for several more years before any change in meds is to occur. We are thrilled and took a trip to celebrate....was going anywahy but nicer with good news!

grammie

[jeffn]

Wow that is great news Grammie! Feels good doesn't it.