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Post by grammie on May 31, 2009 19:08:13 GMT -5
I know this was mentioned on the "old board" but I need a refresher. My hands are becoming very dark and I do wear gloves outside but not in the car. I also use sunscreen first thing in the morning on my hands, face, and arms. The lines on my palms and the bottom of my feet are becoming very pronounced. It is also beginning to affect my face...lots of brown spots, deeper than a freckle!
I did check with rhymie and he said that it was the minocycline. Summer hasn't really hit yet---and I live outside and on the water most of the summer!!---- and I wonder what I'll look like by late summer! Any suggestions anyone?
grammie
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Post by steve201 on May 31, 2009 19:35:56 GMT -5
yeah..switch to tetracycline....minocycline makes some people hyperpigmented and when I was on it ...I got a tan in flourescent lights.....someone once asked me if I'd been to the bahama's....said I wished but then people started asking me where my 7-11 store was locate....just kidding...but I did start to have the homies give me hi 5's.....
Steve
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Post by jeffn on Jun 1, 2009 15:49:07 GMT -5
I darkened up before I went on the mino from the SD. In addition I had lots of dark spots that before SD I put off to too many years in the sun. Now I think it may have been early SD symptoms. Since I went on the mino I do tan more, a couple of days in the sun and it looks like I have been out a lot more than that. I almost always wear a hat (shortage of hair) and favor the heavy duty sunscreen. I seem to get dark to a point and then it levels out. As I have mentioned before I'm a kind of a lug and don't really care too much about the spots etc. It just is. I know some, like Steve, do switch to Doxy and that seems to help. Personally I would stick with the mino as long as possible.
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Post by steve201 on Jun 1, 2009 16:22:25 GMT -5
I switched to tetracycline...not doxicycline...that is usually used for dental issues cuz it is fast acting and short lived....ie...a few hrs...
Steve
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Post by jeffn on Jun 1, 2009 18:28:13 GMT -5
I switched to tetracycline...not doxicycline...that is usually used for dental issues cuz it is fast acting and short lived....ie...a few hrs... Steve Sorry for my confusuion. Interesting because recently there was a thread over on RBF about people who have switched to Doxy. Different docs different meds I guess.
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Post by steve201 on Jun 1, 2009 18:40:36 GMT -5
hmmm...I was told by a dentist that since I had a a bicuspid aortic valve..I needed to have like 500 mgs for any kind of dental work.....so..the reason was that it would prevent me having some sort of infection set in on my heart....now I just thought he was nuts..kinda like going thru the sphincter for a headache.......but I wasn't going to argue the point...as it turned out.....he said it was cuz doxy is fast working into the blood stream and didn't last long in the system... that's his story and he stuck too it!!.. Steve
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Post by jeffn on Jun 1, 2009 19:16:18 GMT -5
Yep the dental work and anti-biotic is pretty common I think. Lots of folks around here do the Doxy before dental work even some without heart issues..
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aajmom
Junior Member
Posts: 76
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Post by aajmom on Jun 2, 2009 16:21:57 GMT -5
Grammie, I have always been very freckled and these have ALL gotten darker from being on the minocycline. I mentioned it to the doc who prescribes the mino, and he said they are indeed darker but it's only the top few layers of skin. I guess he was telling me not to worry about it- so even though I am VERY hyperpigmented, I just don't think about it. As the others have said, yes- I look like I have a great tan.
About the sunscreen- I do apply it first thing in the morning and just recently someone starting nagging me (can't remember if it was a doc, a friend, or a relative) but now I actually do re-apply it again later in the day since it only lasts for a couple of hours. - Adriane
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becjo
New Member
You do not have a right to be a victim-Richard Harper
Posts: 44
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Post by becjo on Jun 2, 2009 20:45:01 GMT -5
My hands have gotten darker since it has really gotten nice here-they were already looking "tan", but now they are darker. I am on Cellcpept and really have to be careful; before I was dx with sd; I was a major sun worshipper and had 3 really bad moles removed, but no cancer So I was told by my cuban dr that I was white and needed to start taking care of my skin better and use sunblock; period I was getting better and so now here I am and so I must start being obsessive about sunblock, because if I don't use it now, I start itching and really going nuts-I prefer a sunburn thank you Please protect your skin at all costs-it is worth it ;D Take care.
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Post by grammie on Jun 3, 2009 21:52:44 GMT -5
Thanks all. I'll not be so concerned about it and get a newer sunscreen with a bigger number and apply more often. Also, I'll put the hat at the back door !
I'd like to stay on the mino since it seems to be working but will bear the other in mind. Thanks folks. grammie
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Post by jeffn on Jun 4, 2009 6:07:31 GMT -5
Grammie, with the weather we have been having the last couple of weeks in the North East sun exposure may not be too much an issue.
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Post by steve201 on Jun 4, 2009 9:38:37 GMT -5
jeff...come on out here....we're hitting 90 today ;D Steve
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Post by Cubby on Jun 4, 2009 16:36:48 GMT -5
GRAMMIE: Yup! It's the Minocyclene!!! When I go to water aerobics everyday, I am covered from top of my head to tip of my toes. Also, put Clinique suntan block (#25) on my face, neck and hands. It is the stuff that is REALLY WHITE till you rub it in. Don't get the #30 as it is not at good.
While we were on vacation, I really got out in the sun with no coverups and in less than a week I am really tan. I do like it, but no more than I have right now. So, use sun screen or switch like Steve said to tetracyclene.
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Post by Christine on Jun 14, 2009 18:02:23 GMT -5
HiGrammie; There are 2 reasons that one gets very dark skin.One is the disease itself.Long before I found out about AP I was very dark even in the middle of winter.I am an archeologist/paleoanthropologist and was freaking out that I was beginning to resemble some of the old Egyptian mummies that I had worked on.I was petrifying just like them but without all the fancy resins. hehehe It took several years on AP to get back to normal.At first I used the high dose of mino and got even darker.After a couple years of only 100mg every second day things started to lighten up and the blu bruses on my legs went away. Even now I get a really dark tan in a few hours wearing an SPF60 sun block.I've just learned to live with being several shades darker than I was before getting sick
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Post by Cubby on Jun 15, 2009 1:16:07 GMT -5
CHRISTINE: IS THAT YOU? ?? Do you still take the Minocin or Clindamyacin at all now? I recently developed the leg bruising. I am thinking of telling my doc I want to cut back to 100's. What do u think?
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