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Post by Cubby on May 18, 2009 11:52:58 GMT -5
Please read the following message I received from Heather at Inspire. I didn't realize that we were not allowed to put this information in private messages. I thought it was just in discussions. So, I won't send any more e-mails to our old pals from this board, who are now on Inspire.
Hello,
Your private messages were brought to my attention as inappropriate for the site. It is against the rules to promote another Scleoderma board in any way to members of Inspire. Please don't continue to send messages to members regarding the other board.
Thank you for your understanding and cooperation,
Heather, TeamInspire
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Post by steve201 on May 18, 2009 12:04:13 GMT -5
boy...isn't that self centered.....can't talk about other information for someone with this disease...well....let them all come here and enjoy something with no rules like that....I'm glad I can't see that place from work...it would drive me nuts trying to be so PC.....
we call it the "God Syndrome"....gotta love it...
cubby ..thanks for putting this together....
Steve
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Post by joannern on May 18, 2009 13:29:10 GMT -5
Good grief they are paranoid. I have a couple of addresses at home so I will send them an eamil when I get home from worlk. Looks like Sherion and jeff are already here, I think I have maybe 2 or 3 more.
Joanne
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Post by jeffn on May 18, 2009 16:24:19 GMT -5
I PMd a couple of people there and just asked them to email me back. I have not heard from any of them. I guess maybe the messages are not going through. Oh well. Have to figure out a way to contact them.
Being on inspire is maybe like being in the witness protection program. No contact with the outside world or your past life.
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Post by sherion on May 18, 2009 19:34:18 GMT -5
I think that is totally immature of that group to be so worried that someone may actually use another site! How ignorant. I'm on 4 different boards, that does NOT mean that I cannot enjoy each of them for different reasons.
Sherion
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Post by sherion on May 18, 2009 22:17:41 GMT -5
Hi Joy, Glad you're here. Hope you like it here. Sam was a moderator on the old board and I guess she just didn't want the pressure or the bother of the board. Instead of offering to hand it over to any of the other members (like Cubby or Steve or Jeff) she just went ahead and shut it down completely. We lost all our info, posts, etc. So here we are, starting from scratch.
Sherion
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Lindar
Junior Member
Posts: 52
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Post by Lindar on May 18, 2009 23:06:07 GMT -5
Ok, Cubby, Steve and Jeff; is this it??? Cause I'm getting really pooped out bouncing all over the place, back and forth etc etc.... one day we're here there and everywhere.... I just can't handle the stress of this anymore.................LOL Meds are really messing up my head, I really don't need any further help with that............... LOL
Linda
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Joy
New Member
Posts: 5
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Post by Joy on May 19, 2009 0:22:04 GMT -5
Hi Sherion...
that is what I understand. I know she doesn't have those capabilities on our other board. I know she has been having a rough time....but she should have given up her title instead of dumping everything.
Looks like you guys are off to a great start!!!!!
love ya,
joy
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Post by Cubby on May 19, 2009 0:31:49 GMT -5
Welcome everyone!!! So glad to see you guys!!!
LINDAR: Yeah, we are just getting started and as long as everyone wants it, our board is here to stay!!!
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sammie
Junior Member
Posts: 64
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Post by sammie on May 19, 2009 9:19:37 GMT -5
Glad to be here!
Sammie
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Post by carolyn12 on May 19, 2009 13:04:50 GMT -5
Thank you Cubby, you're doing a great job for this board. I Love it!
Carolyn
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Post by kathsherman on May 19, 2009 13:15:19 GMT -5
o.k.......made it here...thanks Cubby, Jeff and steve for contacting me. I will sit and read the posts later, after work. Hopefully, I will get the picture and settings correct, again. As I've stated many times....I can "try" to direct patron's with reference questions at the main desk of our library, but can not post a picture correctly on a message board...go figure.... thanks again.....I missed you all....
Kathleen xoxoxo
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Post by lindarn on May 19, 2009 13:20:52 GMT -5
I made it here too....thanks Joanne for emailing me. I hadn't even signed into Inspire yet....but it sounds rather restrictive. I'd rather enjoy my posts/time with you guys!
Linda
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Post by steve201 on May 19, 2009 16:23:12 GMT -5
the 3 of us are dedicated to making this site a fair...caring and responsive site for people like us with SD....any question we can answer or someone can provide information for ..even another site...is ok to post...as long as we can keep this board going for you...that is the main thing....
we hope you enjoy and contribute to the new SD site.....
Steve
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