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Post by steve201 on May 27, 2009 7:53:21 GMT -5
Karen we are..this is typical guy stuff!!..
Steve
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Post by jeffn on May 27, 2009 10:12:49 GMT -5
Karen - All in good fun. Thats what the emotocons (sp?) are for. Note the ;D
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Post by klw1960 on May 27, 2009 10:50:53 GMT -5
You guys forget I grew up in a family of 3 older brothers and no sisters and now have 5 children, married 1, had 2, adopted the dog and cat....so I am sooo used to being around men and boys....you 2 are more than typical. I wasn't yelling because if I did you would know it! Trust me after being around men my whole life my sense of humor is "sick' sometimes... Karen
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Post by jeffn on May 27, 2009 11:10:33 GMT -5
You guys forget I grew up in a family of 3 older brothers and no sisters and now have 5 children, married 1, had 2, adopted the dog and cat....so I am sooo used to being around men and boys....you 2 are more than typical. I wasn't yelling because if I did you would know it! Trust me after being around men my whole life my sense of humor is "sick' sometimes... Karen Sick??? I am really quite a prince.
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Post by klw1960 on May 27, 2009 13:22:51 GMT -5
Prince of BS?
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Post by jeffn on May 27, 2009 14:41:43 GMT -5
Nice talk - How quick they turn on me.
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Post by steve201 on May 27, 2009 14:58:11 GMT -5
man..you girls gotta learn to play nice ;D ;D
Steve
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Post by isobelle44 on May 27, 2009 17:26:45 GMT -5
LOL: Boy Jeff sounds like klw has your number.
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Post by jeffn on May 27, 2009 18:00:17 GMT -5
LOL: Boy Jeff sounds like klw has your number. Cheesehead!
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Post by shirley on May 27, 2009 18:16:31 GMT -5
Jeff..my name is Shirley and I have had SD for about 26 years now...I was diagnosed at U.A.B in Birmingham ,Alabama by Dr. Eugene Ball. When I got this horrid disease there was not any medicine out there to give anybody except Pennicillimine ( I doubt I spelled that right ) They chose to "WATCH" me and see what happened before putting me on that since the side effects were so bad. Sooooo they watched me...I was extremely sick. All I can say is they never put me on any of the real big medicines...I took a couple of rounds of prednisone because of real bad rashes. They called mine Limited SD. I could not take anti-inflammatories because they hurt my stomach so bad. I DID however take medicine for heartburn which I had TERRIBLY for several years. As the years went by I slowly got over the extreme fatique....I slept in a recliner and my heartburn got better...I only have to take heartburn medicine now if I eat spicy food at night. I suffer from Raynaulds in the winter mainly now. My main problem now is Calcium Deposits...I have had surgery on so many of them. I also have read where it says that many people will be sick for about 3 years then the disease will slow down and go into remission. The only place that the skin is still tight is on my face. The rest of my skin has all softened up. I can pinch it up now. I got some lung involvement right at first and it never got any worse ( Thank God ) So there you have it. I still have to stay very warm in the winter months because of Raynaulds...I don't get out much then but I make up for it in the summer months...lol... Since I am doing as well as I am the Dr's see no point in putting me on medicine now.... However if I had just got diagnosed at this time I would ASK for the AP therapy. Shirley
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Post by jeffn on May 27, 2009 19:07:54 GMT -5
Great post Shirley - thanks. So fortunately many of your issues improved and others stabilized. Much of the first literature I had read when my SD went active was written during the era when you came down with SD. I found it to be depressing stuff. As I have said before some cope and not much hope. Those early years must have been trying for you to say the least. I was fortunate in that my SD did not really take off until I was 55, so I had a good run previous to SD. I'm glad that there are more choices of treatment for all of us now.
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Post by kathsherman on May 27, 2009 19:19:07 GMT -5
Wow Shirley......I honor you...26 years and counting..you go girl.....thanks for the post, inspirational.
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Post by shirley on May 27, 2009 19:21:38 GMT -5
Thank you Jeff for saying that...it was extremely depressing for me...No one understood what I was going through.... all I read was horrible and I did not have a computer and did not know one soul who had it but "ME"...I made the mistake of going to the Library...I cried myself to sleep every night. I told my Dr. and he said for me to remember one thing... He said "They only write about the very worst cases and that SD effects everyone different." When my son gave me his old computer...I went wild looking for information...I wanted to talk to just ONE other person who had this disease besides me...misery loves company...they say. I never thought I would live Jeff...I am surprsied that I am sitting here talking to you actually. I can say that my SD is not getting WORSE ( Progressing ) but I still suffer from many of the things it did to me when it was active... such as Calcium Deposits and Raynaulds..... I can clean my house...I cook and I eat very good...lol... Shirley
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Post by jeffn on May 27, 2009 19:26:44 GMT -5
Shirley - While I have not suffered with this as long as you I did go through a period when I thought about dying every day. As you know not a great time. Fotunately we have both moved on. I guess like they say"living well (or as well as we can) is the best revenge" Be well - eat well
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Post by shirley on May 27, 2009 19:49:18 GMT -5
Right Jeff! LOL! MY advice to ALL is "There is ALWAYS hope" ...don't ever ever give up on yourself. Never give this disease permission to WIN.... Fight this disease with every fiber of your being. There is light at the end of the tunnel... Keep looking for it everybody. Hugs, Shirley
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