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Post by beebell on Feb 3, 2010 15:34:36 GMT -5
Hi Everyone!
I have been busy with my awesome life! I am doing very well! Thanks be to God and AP I have my life back! I have full extension in my arms and skin is soft I'm back to normal! I'm no longer the tin man! yay! Dr Franco is so happy with the progress ive been making.
I am very said today and Cubby you will remember this story. A young lady on my myspace page was dx with scleroderm when she was 15 around the same time I was dx. I got her information for an AP Dr told her to please have her mom call me or Cheryl F on here. Well she passed away. She got a stem cell transplant died a week later loss of blood and chemo was too much. gone at 17. She was in the same boat as me I was bad but not bad enough for a transplant. She was still going to school and active be for thansplant... I don't understand! I'm so heart broken. That wasn't her last hope she didn't have to die. I don't get Dr's.. I don't care what anyone says don't knock it till you try it and give it some damn time because this works! Forgive me I'm very upset right now. I just want people to get better with me not worse and die....
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Post by Cubby on Feb 3, 2010 16:05:11 GMT -5
That breaks my heart!
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Post by mikana on Feb 9, 2010 10:01:34 GMT -5
This is such a tragedy, this did not need to happen and a young wonderful has been cut way too short. AP is the only way back. The only way, I don't understand why they don't give it a chance. Too many people have gone into remission with this treatment for it to be swept under the carpet. My prayers out to her family.
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