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Post by Cubby on Jun 19, 2009 16:32:34 GMT -5
KATHYGIIRL: Couldn't they just put you back on the cytoxan? I recognize that you had to take the AP along with the cytoxan. For many people, the AP alone worked. In my case, I do Photopheresis with it. I always kind of wondered if I even needed the Photopheresis with the AP, until last Fall when I had 2 minor flareups. I increased my Photopheresis and the problem went away. So, in my case and probably in yours, you need another drug too!
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Post by kathygirl on Jun 22, 2009 21:25:36 GMT -5
The doc wants to wait another 6 weeks to see if Imuran works. I have only been on full dose Imuran for 6 weeks. It issuppossed to start working in 3 months. I have another appointment with the doc in 3 weeks and we will see how much the skin hardening has progressed. I would like to know what the stats are when it comes to immunosuppressants giving you cancer. So many people I know have just out of the blue gotten cancer, how much worse can Cytoxan or Imuran be? Has anyone here gotten cancer after taking these drugs? Kathy
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