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Post by jeffn on Aug 5, 2009 8:33:19 GMT -5
This might be interesting. Considering physical limitations common to SD what feature or thing typically found in a normal home do you find the most vexing to deal with? Like door knobs, bed height, things along those lines - anything in the home. Lets confine this to things in the home as outside the home could be a topic for later.
Someone else go first this time.
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aajmom
Junior Member
Posts: 76
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Post by aajmom on Aug 5, 2009 9:26:47 GMT -5
LOVE THESE SHAMELESS TROLLS!!! For me it really depends on my "status" and how "I'm doing" that day or week. However, overall I would have to say that opening jars consistently gives me the most problems. I can never open one by myself- always have to ask for help.
There are times when my body is less cooperative and opening doors is hard (that is generally in the morning), and sewing anything is a real problem- just getting the needle threaded is a real challenge!! When my system is really down I even have trouble writing- grabbing the pen tightly can be very difficult.
I HAVE made tremendous progress with my hands, however, since I've been onAP. Previously there were times when I couldn't grab my toothbrush or hairbrush! Fortunately those are all things of the past!
Have learned to appreciate what I CAN do- try not to focus on my limitations.- Adriane
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Post by steve201 on Aug 5, 2009 11:07:19 GMT -5
hte one thing that really killed me at the time was I couldn't play my 12string guitar.......I loved playing it...sounds so nice when you get a song right....I'd been playing since I was 14 yrs old...I'd get so winded and exhausted after just a few songs..then my hands started giving out...I'd cramp up in the hands....... now..I'm an eagles fan...of course I play other things like pink floyd...etc....I lived and played for my self to enjoy.....but stopping playing my 12 string about did me in.... so..had to find another outlet...that became a 4 string bass guitar......it works....alot of fun but I now have to learn HOW to play the bass guitar.. keeping in the house..ok...outside ....on the lawn.....I have a pretty small front yard...I found that working in the yard was killer..it would take me all day to mow the lawn...by the time I'd get done...I was exhausted....have to stop half way thru it to take a breath.....my neighbors would watch me to make sure I'd stay verticle...sometimes I'd have to shut the mower off and sit down on a chair to catch my breath....it was a killer.....I'm better now but sometimes I do get winded at times..
Steve
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Post by kathsherman on Aug 5, 2009 12:55:04 GMT -5
The most annoying "home limitation" has to be....flexibility and/or difficulty while squatting to clean/wipe the floor/floorboards!!! Also, reaching in the back of the lower cupboards/shelves in the pantry. I'm a "clean freak" and liked (past tense) to clean/wash floors on my hands and knees. Thank goodness for swiffer sweepers. I can still bend down, but it "ain't" pretty.... For opening bottles/jars, we installed a v-shaped, gripper-opener, under our upper kitchen cabinet and it has been a life saver. Kathleen xo
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Post by joannern on Aug 5, 2009 16:21:54 GMT -5
Jars, bottles and door knobs. Carrying the cat litter and I guess anything that requires hand strength. Some of our windows can be difficult also. Oh yeah and buttons on blouses!
Sigh....
Joanne
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Post by ndpblake on Aug 5, 2009 18:46:15 GMT -5
You have said it all for me: sewing; needles to thread; jars to open; a new camera (for a new class in digital photography) with little areas one has to open to get the camera to work, never mind taking the picture (spent an hour trying to put the wrist thing on the camera that helps one not to drop the camera); walking to keep up with others going to a destination in the trafficky city (others walk fast); walking anywhere fast, or just to keep up; trying not to get angry over everything! Some of these are not home things. Getting down on hands and knees - forget it, I am 78 and not in good shape anyway. What is the most and very maddening thing is that because of esophagus problems, my voice has changed which makes it impossible for others to hear me. Since my friends are all 80 or close to it, they are all deaf. So, I have become out of it, as I don't think I have ever finished a sentence lately without spouse and friends are on to another subject. Peace! Nancy
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Post by sherion on Aug 5, 2009 18:55:38 GMT -5
Mopping, vacuuming,and anything I'd have to bend down for.So far knobs have not been a problem. Sometimes opening a can is impossible. And like Joanne, buttons can be very difficult, I usually stick with Tshirts or any slip on blouse.
Sherion
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Post by christine10 on Aug 5, 2009 21:40:08 GMT -5
O.K. guys; You know that English is not my language so would someone tell me what a troll is.I think I must be missing something here.The only troll I know of is this little develish thing in Norwegian mythology that lives under bridges or in forests" hollowed out trees.
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Post by jeffn on Aug 6, 2009 6:42:12 GMT -5
Troll is an internet expression. My understanding is that it is a post on a board that is put there to elicit responses, often just to start trouble or an argument. This is not the critter under the bridge but think trolling for fish - you are putting out bait and hoping for a bite. My trolls are not here to start an argument but to start some conversation about our issues.
I got the idea around the time the old board disappeared and the new SDF foundation board was starting out. There were a couple of people that were posting frequently over there and asking questions they obviously knew the answer to just to generate traffic, in my view. Anyway now that the site is up those people have disappeared, I wonder if they even had SD. Anyway when one of these posts would appear I would think "Oh another shameless troll". I decided to use the idea to generate some discussion here but be honest about it ie the shameless part. As I said not to start arguments, nor do I know the answers. Just ramblings about things I am curious about.
If these are making people crazy I will stop posting them or think about it anyway. I enjoy the responses - let me know.
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Post by joannern on Aug 6, 2009 7:18:57 GMT -5
My vote is to keep them coming. The responses always let me know I have company on this journey. I thank you for your efforts.
Joanne
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Post by kathsherman on Aug 6, 2009 8:01:26 GMT -5
Jeff....I think the "Trolls" are an excellent way to begin a topic, in order for members to share their experiences.
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becjo
New Member
You do not have a right to be a victim-Richard Harper
Posts: 44
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Post by becjo on Aug 6, 2009 8:07:56 GMT -5
The things I find difficult doing in my home is: cleaning on my hands and knees, door knobs, opening jars & closing jars (I have a neat piece of like rubber that helps a lot with this), and baking stuff that I love. I even been canning my veggies from my garden...that can be difficult to do, but I do it! But I do not give up-my hand strength since doing my hand exercises since last winter has really helped, so I keep trying to do what I want to do...but if I have problems, usually my family is willing to help.
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Post by steve201 on Aug 6, 2009 8:10:05 GMT -5
jeff....your doing good.....even if your short and fuzzy!!
Steve
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Post by christine10 on Aug 6, 2009 12:37:47 GMT -5
Steve,you make me laugh,are you insinuating that Jeff may be a troll? hehehe Jeff,I love the idea,it is a good way to get to know each other....and have a few laughs.
My pet peave when I was petrified was trying to put in my ear rings.I found a good way to limber up my hands was to was the dishes in very warm water and then to wring out the dish cloth as hard as I could for several times.That beat all the hand excercises the doctor told me about
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aajmom
Junior Member
Posts: 76
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Post by aajmom on Aug 6, 2009 14:46:07 GMT -5
I forgot to include this in my prior post (must be the brain fog thing going on!), but I find preparing any type of cold food is extremely difficult for me!! Although it's not exactly a "physical limitation"- since it's due to my raynaud's- I find it really hard to cope with. There are so many things- from salads, to meat loaf, to touching a cold piece of fish or meat- that are truly hard for me due to the cold. My hands become unbearably painful and I find myself wishing I didn't have this darn disease when I'm cooking something that's not warm!! I really enjoy cooking and it upsets me when I can't do it like I'd like to !- Adriane
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